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Thursday 30 November 2017

Man who inspired the ALS Ice Bucket Challenge, dies of the disease at 46


Anthony Senerchia, the man who inspired the viral sensation “ALS Ice Bucket Challenge” has died after a 14-year long battle with the disease. He passed away on Saturday at the age of 46.


Senerchia was diagnosed with amyotrophic lateral sclerosis, ALS, in 2003, and was told he only had a few years to live, shortly after marrying his wife Jeanette.

“Throughout his fight, Anthony maintained a positive attitude and would say ‘It’s not what we take from life, but what we give back to others is what ultimately defines us,'” his obituary reads.

Senerchia founded the Anthony Senerchia Jr. ALS Charitable Foundation, which helped fund research at Columbia Presbyterian Medical Center, as well as families impacted by the disease.

He is best known for being the inspiration for the ALS Ice Bucket Challenge, which became a worldwide sensation in 2014, attracting millions around the globe to take part in the challenge and make donations to ALS research. 📸: Deborah Karson

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